We support clinical research by providing patient insight and sometimes work with other organisations to ensure research funding is directed in the best way.
Providing insight
Our insight network of people with personal experience of cardiomyopathy works with researchers to help them develop their research proposals so that they can be confident that their projects can eventually lead to real benefits for people with cardiomyopathy. We also provide ongoing advice to researchers through their research projects and help them to share their findings with the wider community. If you would like to know more about our insight network and how you can join the team, please visit the volunteering section here
Working with funders
We do not raise funds for clinical research or make grants directly. On occasion however, we work with groups and individuals who are interested in funding cardiomyopathy related research to make sure that the projects they support can make a significant impact and change lives for the better. Below you can find some more information about the the research projects we have worked on.
In 2020 the Charity worked with the Arrhythmogenic Cardiomyopathy Trust to fund a two year research project at University College London. This project aims to create an arrhythmogenic cardiomyopathy biobank resource that will be accessible to other researchers, and help to kick start research into this form of cardiomyopathy.
We have teamed up with researchers at Imperial College London to build an online platform that brings together cardiomyopathy researchers and patients who may be interested in participating in clinical research. We were able to award a grant of £120,000 through the Alexander Jansons Fund, Additional funds were raised through a Crowdfunder campaign.
